Similares a Introducing the Rare Awareness Rare Education (RARE) Portal for Rare Diseases

20 vecinos (text_768) · 15 views · Rare Voices Australia · Australia


★	Introducing the Rare Awareness Rare Education (RARE) Portal for Rare Diseases	Rare Voices Australia @rarevoicesaustralia2025	15	Australia
9	Raising Youth Voices 2026	Rare Disease Day @rarediseaseday	996	—	85
11	Raising Youth Voices 2026 Short Film	Rare Disease Day @rarediseaseday	373	—	85
10	ERN ReCONNET video to launch the RARE DISEASES AWARENESS MONTH 2024!	ERN ReCONNET @ernreconnet	360	—	85
14	RDI Public Webinar: Towards a World Health Assembly Resolution on Rare Diseases 2025	Rare Diseases International @rarediseasesinternational3378	208	—	85
2	National Strategic Action Plan for Rare Diseases	Rare Voices Australia @rarevoicesaustralia2025	105	Australia	90
13	From Awareness to Action: Catalyzing Change for Rare Diseases \| Riya Patel \| TEDxMoreauCatholicHS	TEDx Talks @tedx	81	Estados Unidos	85
16	Improving rare disease diagnosis and prognosis with yeast functional assays	UW Video @uwvideo	75	Estados Unidos	85
19	#SEERARE - Global Rare Disease Day 2023	Rare Diseases International @rarediseasesinternational3378	67	—	85
15	Pillar 2: Care and Support - The National Strategic Action Plan for Rare Diseases	Rare Voices Australia @rarevoicesaustralia2025	50	Australia	85
17	Pillar 3: Research and Data - The National Strategic Action Plan for Rare Diseases	Rare Voices Australia @rarevoicesaustralia2025	39	Australia	85
12	#ACT4RARE Toolkit Launch - Webinar - 12.10.2022	Rare Diseases International @rarediseasesinternational3378	25	—	85
1	RDI Member-led Meeting Series: Advocating for a National Plan - Rare Voices Australia	Rare Diseases International @rarediseasesinternational3378	23	—	91
7	Pillar 1: Awareness and Education - The National Strategic Action Plan for Rare Diseases	Rare Voices Australia @rarevoicesaustralia2025	23	Australia	86
18	Raising the Awareness of Rare Diseases	ICON Plc @iconplc	13	Irlanda	85
3	Rare Voices Australia 2023 Rare Disease Day Media Pack	Rare Voices Australia @rarevoicesaustralia2025	12	Australia	88
8	Launch: National Strategic Action Plan for Rare Diseases	Rare Voices Australia @rarevoicesaustralia2025	10	Australia	86
4	Rare Diseases: A Global Priority for Equity - Advocate Testimonials	Rare Diseases International @rarediseasesinternational3378	6	—	87
5	Fair For Rare: Our mission at Rare Voices Australia	Rare Voices Australia @rarevoicesaustralia2025	1	Australia	87
6	Fair For Rare: Call for a National Rare Disease Framework	Rare Voices Australia @rarevoicesaustralia2025	1	Australia	86
20	Fair For Rare: Why Access to Treatment is important	Rare Voices Australia @rarevoicesaustralia2025	0	Australia	85