Similares a Pillar 1: Awareness and Education - The National Strategic Action Plan for Rare Diseases

20 vecinos (text_768) · 23 views · Rare Voices Australia · Australia


★	Pillar 1: Awareness and Education - The National Strategic Action Plan for Rare Diseases	Rare Voices Australia @rarevoicesaustralia2025	23	Australia
9	RDI Public Webinar: Towards a World Health Assembly Resolution on Rare Diseases 2025	Rare Diseases International @rarediseasesinternational3378	208	—	87
20	From Voices to Breakthroughs: The 2025 NORD Breakthrough Summit	National Organization for Rare Disorders (NORD) @raredisorders	159	Estados Unidos	86
17	Rare Disease Day: Ways to Get Involved and Raise Awareness	National Organization for Rare Disorders (NORD) @raredisorders	110	Estados Unidos	86
3	National Strategic Action Plan for Rare Diseases	Rare Voices Australia @rarevoicesaustralia2025	105	Australia	90
19	From Awareness to Action: Catalyzing Change for Rare Diseases \| Riya Patel \| TEDxMoreauCatholicHS	TEDx Talks @tedx	81	Estados Unidos	86
15	UHC Day 2020 - Universal Health Coverage for Rare Diseases	Rare Diseases International @rarediseasesinternational3378	74	—	86
2	Pillar 2: Care and Support - The National Strategic Action Plan for Rare Diseases	Rare Voices Australia @rarevoicesaustralia2025	50	Australia	97
11	Mobilize for Newborn Screening: Tools for Advocates During Awareness Month	National Organization for Rare Disorders (NORD) @raredisorders	44	Estados Unidos	86
1	Pillar 3: Research and Data - The National Strategic Action Plan for Rare Diseases	Rare Voices Australia @rarevoicesaustralia2025	39	Australia	97
5	#ACT4RARE Toolkit Launch - Webinar - 12.10.2022	Rare Diseases International @rarediseasesinternational3378	25	—	87
8	Raising awareness for rare diseases	KELOLAND News @kelolandnews	25	Estados Unidos	87
7	Raising Awareness for Rare Diseases	Rare Diseases International @rarediseasesinternational3378	16	—	87
14	Introducing the Rare Awareness Rare Education (RARE) Portal for Rare Diseases	Rare Voices Australia @rarevoicesaustralia2025	15	Australia	86
10	Raising the Awareness of Rare Diseases	ICON Plc @iconplc	13	Irlanda	86
4	Launch: National Strategic Action Plan for Rare Diseases	Rare Voices Australia @rarevoicesaustralia2025	10	Australia	90
6	Raising awareness of rare diseases	FOX 17 WXMI @fox17wxmi	6	Estados Unidos	87
13	Rare Diseases: A Global Priority for Equity - Advocate Testimonials	Rare Diseases International @rarediseasesinternational3378	6	—	86
12	Raising Awareness on Rare Disease Day	WMAR-2 News @wmar2news	2	Estados Unidos	86
16	Fair For Rare: Call for a National Rare Disease Framework	Rare Voices Australia @rarevoicesaustralia2025	1	Australia	86
18	Khure Health: Enabling the advancement of awareness and education on rare diseases.	Khure Health @khurehealth4579	1	Canadá	86