Similares a Pillar 3: Research and Data - The National Strategic Action Plan for Rare Diseases

20 vecinos (text_768) · 39 views · Rare Voices Australia · Australia


★	Pillar 3: Research and Data - The National Strategic Action Plan for Rare Diseases	Rare Voices Australia @rarevoicesaustralia2025	39	Australia
20	Rewriting the Rules: Scaling Innovation for Rare Diseases \| Global Conference 2026	Milken Institute @milkeninstitute	497	Estados Unidos	85
12	Webinar on the Plan of Action for Malaria Elimination in the Americas 2026–2030	PAHO TV @pahotv	229	Estados Unidos	85
7	RDI Public Webinar: Towards a World Health Assembly Resolution on Rare Diseases 2025	Rare Diseases International @rarediseasesinternational3378	208	—	86
16	From Voices to Breakthroughs: The 2025 NORD Breakthrough Summit	National Organization for Rare Disorders (NORD) @raredisorders	159	Estados Unidos	85
17	Leveraging Innovative Trial Designs and Technologies to Accelerate - NORD Scientific Symposium	National Organization for Rare Disorders (NORD) @raredisorders	129	Estados Unidos	85
4	National Strategic Action Plan for Rare Diseases	Rare Voices Australia @rarevoicesaustralia2025	105	Australia	90
10	Registries and Real World Data as Development Platforms - NORD Scientific Symposium	National Organization for Rare Disorders (NORD) @raredisorders	99	Estados Unidos	85
9	UHC Day 2020 - Universal Health Coverage for Rare Diseases	Rare Diseases International @rarediseasesinternational3378	74	—	86
11	#SEERARE - Global Rare Disease Day 2023	Rare Diseases International @rarediseasesinternational3378	67	—	85
2	Pillar 2: Care and Support - The National Strategic Action Plan for Rare Diseases	Rare Voices Australia @rarevoicesaustralia2025	50	Australia	97
15	Mobilize for Newborn Screening: Tools for Advocates During Awareness Month	National Organization for Rare Disorders (NORD) @raredisorders	44	Estados Unidos	85
5	#ACT4RARE Toolkit Launch - Webinar - 12.10.2022	Rare Diseases International @rarediseasesinternational3378	25	—	87
1	Pillar 1: Awareness and Education - The National Strategic Action Plan for Rare Diseases	Rare Voices Australia @rarevoicesaustralia2025	23	Australia	97
19	RDI Member-led Meeting Series: Advocating for a National Plan - Rare Voices Australia	Rare Diseases International @rarediseasesinternational3378	23	—	85
14	Developing National Plans and Strategies with Adam Jaffe	Rare Diseases International @rarediseasesinternational3378	18	—	85
18	Introducing the Rare Awareness Rare Education (RARE) Portal for Rare Diseases	Rare Voices Australia @rarevoicesaustralia2025	15	Australia	85
3	Launch: National Strategic Action Plan for Rare Diseases	Rare Voices Australia @rarevoicesaustralia2025	10	Australia	91
8	3 SUPPORTING RARE DISEASES AS A GLOBAL PRIORITY FOR EQUITY	Rare Diseases International @rarediseasesinternational3378	10	—	86
13	Rare Diseases: A Global Priority for Equity - Advocate Testimonials	Rare Diseases International @rarediseasesinternational3378	6	—	85
6	Fair For Rare: Call for a National Rare Disease Framework	Rare Voices Australia @rarevoicesaustralia2025	1	Australia	87