Similares a National Strategic Action Plan for Rare Diseases

20 vecinos (text_768) · 105 views · Rare Voices Australia · Australia


★	National Strategic Action Plan for Rare Diseases	Rare Voices Australia @rarevoicesaustralia2025	105	Australia
20	Raising Youth Voices 2026	Rare Disease Day @rarediseaseday	996	—	84
9	Raising Youth Voices 2026 Short Film	Rare Disease Day @rarediseaseday	373	—	87
19	Understanding the FDA's Plausible Mechanism Framework	National Organization for Rare Disorders (NORD) @raredisorders	276	Estados Unidos	84
14	From Voices to Breakthroughs: The 2025 NORD Breakthrough Summit	National Organization for Rare Disorders (NORD) @raredisorders	159	Estados Unidos	85
13	Stay Covered: Open Enrollment Essentials for Rare Disease Families	National Organization for Rare Disorders (NORD) @raredisorders	152	Estados Unidos	85
16	NORD®'s 2025 Rare Disease Advisory Council Stakeholders Webinar	National Organization for Rare Disorders (NORD) @raredisorders	61	Estados Unidos	85
1	Pillar 2: Care and Support - The National Strategic Action Plan for Rare Diseases	Rare Voices Australia @rarevoicesaustralia2025	50	Australia	91
17	Voices of PLWRD and PLWUD from around the world in support of the #Resolution4Rare	Rare Diseases International @rarediseasesinternational3378	49	—	84
12	Mobilize for Newborn Screening: Tools for Advocates During Awareness Month	National Organization for Rare Disorders (NORD) @raredisorders	44	Estados Unidos	85
18	#ACT4RARE - ACT ON THE UN RESOLUTION	Rare Diseases International @rarediseasesinternational3378	42	—	84
4	Pillar 3: Research and Data - The National Strategic Action Plan for Rare Diseases	Rare Voices Australia @rarevoicesaustralia2025	39	Australia	90
11	#ACT4RARE Toolkit Launch - Webinar - 12.10.2022	Rare Diseases International @rarediseasesinternational3378	25	—	86
2	Pillar 1: Awareness and Education - The National Strategic Action Plan for Rare Diseases	Rare Voices Australia @rarevoicesaustralia2025	23	Australia	90
5	RDI Member-led Meeting Series: Advocating for a National Plan - Rare Voices Australia	Rare Diseases International @rarediseasesinternational3378	23	—	89
15	How to Volunteer to Spread Rare Disease Awareness with NORD	National Organization for Rare Disorders (NORD) @raredisorders	23	Estados Unidos	85
7	Developing National Plans and Strategies with Adam Jaffe	Rare Diseases International @rarediseasesinternational3378	18	—	88
3	Introducing the Rare Awareness Rare Education (RARE) Portal for Rare Diseases	Rare Voices Australia @rarevoicesaustralia2025	15	Australia	90
10	Rare Voices Australia 2023 Rare Disease Day Media Pack	Rare Voices Australia @rarevoicesaustralia2025	12	Australia	86
6	Launch: National Strategic Action Plan for Rare Diseases	Rare Voices Australia @rarevoicesaustralia2025	10	Australia	89
8	Rare Diseases: A Global Priority for Equity - Advocate Testimonials	Rare Diseases International @rarediseasesinternational3378	6	—	87