Similares a NORD®'s 2025 Rare Disease Advisory Council Stakeholders Webinar

20 vecinos (text_768) · 61 views · National Organization for Rare Disorders (NORD) · Estados Unidos


★	NORD®'s 2025 Rare Disease Advisory Council Stakeholders Webinar	National Organization for Rare Disorders (NORD) @raredisorders	61	Estados Unidos
10	🔴 RDD webinar: how to raise awareness among healthcare providers?	Rare Disease Day @rarediseaseday	638	—	87
12	Webinar Rare Disease Day 2023 - Download materials on our website to raise awareness	Rare Disease Day @rarediseaseday	558	—	87
15	Raising Youth Voices 2026 Short Film	Rare Disease Day @rarediseaseday	373	—	86
1	Countdown to Rare Disease Day 2026!	National Organization for Rare Disorders (NORD) @raredisorders	277	Estados Unidos	89
2	RDI Public Webinar: Towards a World Health Assembly Resolution on Rare Diseases 2025	Rare Diseases International @rarediseasesinternational3378	208	—	88
7	NORD® Rare Disease Scientific Symposium 2025	National Organization for Rare Disorders (NORD) @raredisorders	173	Estados Unidos	87
6	From Voices to Breakthroughs: The 2025 NORD Breakthrough Summit	National Organization for Rare Disorders (NORD) @raredisorders	159	Estados Unidos	88
13	Stay Covered: Open Enrollment Essentials for Rare Disease Families	National Organization for Rare Disorders (NORD) @raredisorders	152	Estados Unidos	87
20	Leveraging Innovative Trial Designs and Technologies to Accelerate - NORD Scientific Symposium	National Organization for Rare Disorders (NORD) @raredisorders	129	Estados Unidos	86
8	Rare Disease Day: Ways to Get Involved and Raise Awareness	National Organization for Rare Disorders (NORD) @raredisorders	110	Estados Unidos	87
14	Registries and Real World Data as Development Platforms - NORD Scientific Symposium	National Organization for Rare Disorders (NORD) @raredisorders	99	Estados Unidos	87
5	NORD Rare Disease Centers of Excellence Grand Rounds \| Rare Disease Day 2026	National Organization for Rare Disorders (NORD) @raredisorders	79	Estados Unidos	88
9	Learn How to Support Our Rare Disease Citizen Petition to the FDA	National Organization for Rare Disorders (NORD) @raredisorders	76	Estados Unidos	87
17	Panel Discussion on the Value of Networked Care Globally	Rare Diseases International @rarediseasesinternational3378	60	—	86
19	FORMAL SIDE-EVENT TO THE UN HIGH-LEVEL POLITICAL FORUM 2022	Rare Diseases International @rarediseasesinternational3378	45	—	86
4	Mobilize for Newborn Screening: Tools for Advocates During Awareness Month	National Organization for Rare Disorders (NORD) @raredisorders	44	Estados Unidos	88
11	RDI World Health Assembly Informal Side-Event - May 2022	Rare Diseases International @rarediseasesinternational3378	40	—	87
3	#ACT4RARE Toolkit Launch - Webinar - 12.10.2022	Rare Diseases International @rarediseasesinternational3378	25	—	88
16	How to Volunteer to Spread Rare Disease Awareness with NORD	National Organization for Rare Disorders (NORD) @raredisorders	23	Estados Unidos	86
18	RDI Member-led Meeting Series: Advocating for a National Plan - Rare Voices Australia	Rare Diseases International @rarediseasesinternational3378	23	—	86