Similares a NORD Rare Disease Centers of Excellence Grand Rounds | Rare Disease Day 2026

20 vecinos (text_768) · 79 views · National Organization for Rare Disorders (NORD) · Estados Unidos


★	NORD Rare Disease Centers of Excellence Grand Rounds \| Rare Disease Day 2026	National Organization for Rare Disorders (NORD) @raredisorders	79	Estados Unidos
4	ERN ReCONNET video to launch the RARE DISEASES AWARENESS MONTH 2024!	ERN ReCONNET @ernreconnet	360	—	88
2	Countdown to Rare Disease Day 2026!	National Organization for Rare Disorders (NORD) @raredisorders	277	Estados Unidos	89
20	RDI Public Webinar: Towards a World Health Assembly Resolution on Rare Diseases 2025	Rare Diseases International @rarediseasesinternational3378	208	—	86
9	NORD® Rare Disease Scientific Symposium 2025	National Organization for Rare Disorders (NORD) @raredisorders	173	Estados Unidos	87
8	From Voices to Breakthroughs: The 2025 NORD Breakthrough Summit	National Organization for Rare Disorders (NORD) @raredisorders	159	Estados Unidos	87
16	Stay Covered: Open Enrollment Essentials for Rare Disease Families	National Organization for Rare Disorders (NORD) @raredisorders	152	Estados Unidos	86
12	Leveraging Innovative Trial Designs and Technologies to Accelerate - NORD Scientific Symposium	National Organization for Rare Disorders (NORD) @raredisorders	129	Estados Unidos	87
1	Rare Disease Day: Ways to Get Involved and Raise Awareness	National Organization for Rare Disorders (NORD) @raredisorders	110	Estados Unidos	89
3	Registries and Real World Data as Development Platforms - NORD Scientific Symposium	National Organization for Rare Disorders (NORD) @raredisorders	99	Estados Unidos	88
6	UHC Day 2020 - Universal Health Coverage for Rare Diseases	Rare Diseases International @rarediseasesinternational3378	74	—	87
10	NORD® Rare Disease Scientific Symposium	National Organization for Rare Disorders (NORD) @raredisorders	71	Estados Unidos	87
7	#SEERARE - Global Rare Disease Day 2023	Rare Diseases International @rarediseasesinternational3378	67	—	87
11	NORD® Rare Disease Scientific Symposium Promo Video	National Organization for Rare Disorders (NORD) @raredisorders	64	Estados Unidos	87
5	NORD®'s 2025 Rare Disease Advisory Council Stakeholders Webinar	National Organization for Rare Disorders (NORD) @raredisorders	61	Estados Unidos	88
15	Panel Discussion on the Value of Networked Care Globally	Rare Diseases International @rarediseasesinternational3378	60	—	86
18	FORMAL SIDE-EVENT TO THE UN HIGH-LEVEL POLITICAL FORUM 2022	Rare Diseases International @rarediseasesinternational3378	45	—	86
14	RDI World Health Assembly Informal Side-Event - May 2022	Rare Diseases International @rarediseasesinternational3378	40	—	86
17	Join the Movement: Raising Awareness for Rare Diseases	Avera Health @averahealth	27	—	86
13	Raising awareness of medical conditions on Rare Disease Day	LOCAL 12 @local12wkrc	8	Estados Unidos	87
19	Raising Awareness for those living with rare diseases	therhodeshow @therhodeshow	0	—	86