Similares a ERN ReCONNET video to launch the RARE DISEASES AWARENESS MONTH 2024!

20 vecinos (text_768) · 360 views · ERN ReCONNET · —


★	ERN ReCONNET video to launch the RARE DISEASES AWARENESS MONTH 2024!	ERN ReCONNET @ernreconnet	360	—
8	IgG4-related disease (IgG4-RD): update on diagnosis and treatments in 2025	ERN ReCONNET @ernreconnet	1.3K	—	89
9	🔴 RDD webinar: how to raise awareness among healthcare providers?	Rare Disease Day @rarediseaseday	638	—	89
5	ERN ReCONNET: the New 2026 Webinar Series	ERN ReCONNET @ernreconnet	630	—	90
16	How to explain the antiphospholipid profile to my patients?	ERN ReCONNET @ernreconnet	300	—	88
1	Countdown to Rare Disease Day 2026!	National Organization for Rare Disorders (NORD) @raredisorders	277	Estados Unidos	90
14	Partage et valorisation des données dans les maladies rares : défis et perspectives européennes	AP-HP, Assistance Publique - Hôpitaux de Paris @aphphopitauxdeparis	165	Francia	88
7	Everything you always wanted to know about Ehlers-Danlos Syndromes (EDS) – Part two	ERN ReCONNET @ernreconnet	151	—	89
12	ERN ReCONNET New Sjögren’s Syndrome (SS) Disease Coordinator: Prof. Gaetane Nocturne (EN)	ERN ReCONNET @ernreconnet	133	—	88
2	ERN ReCONNET New Ehlers-Danlos syndromes (EDS) Disease Coordinator: Dr. Marco Castori (IT)	ERN ReCONNET @ernreconnet	123	—	90
19	Rare Disease Day: Ways to Get Involved and Raise Awareness	National Organization for Rare Disorders (NORD) @raredisorders	110	Estados Unidos	88
4	ERN ReCONNET New Ehlers-Danlos syndromes (EDS) Disease Coordinator: Dr. Marco Castori (EN)	ERN ReCONNET @ernreconnet	105	—	90
13	ERN ReCONNET New Sjögren’s Syndrome (SS) Disease Coordinator: Prof. Gaetane Nocturne (FR)	ERN ReCONNET @ernreconnet	99	—	88
6	ERN ReCONNET ePAG Olga Drápalová: A message for the World Myositis Day, Sept. 21st	ERN ReCONNET @ernreconnet	86	—	89
3	3rd ERN ReCONNET Sharing Good Practice 2025 Event	ERN ReCONNET @ernreconnet	84	—	90
17	NORD Rare Disease Centers of Excellence Grand Rounds \| Rare Disease Day 2026	National Organization for Rare Disorders (NORD) @raredisorders	79	Estados Unidos	88
20	#SEERARE - Global Rare Disease Day 2023	Rare Diseases International @rarediseasesinternational3378	67	—	88
10	Multidisciplinary diagnosis and team treatment in Idiopathic Inflammatory Myopathies	ERN ReCONNET @ernreconnet	64	—	89
15	RDI World Health Assembly Informal Side-Event - May 2022	Rare Diseases International @rarediseasesinternational3378	40	—	88
11	Genetic Testing in the Era of NGS: Lessons from the Hereditary Connective Tissue Disorders	ERN ReCONNET @ernreconnet	35	—	89
18	#ACT4RARE Toolkit Launch - Webinar - 12.10.2022	Rare Diseases International @rarediseasesinternational3378	25	—	88