Similares a Life of a Rare Disease Advocate - NORD ft. Swifties

20 vecinos (text_768) · 562 views · National Organization for Rare Disorders (NORD) · Estados Unidos


★	Life of a Rare Disease Advocate - NORD ft. Swifties	National Organization for Rare Disorders (NORD) @raredisorders	562	Estados Unidos
9	I advocate for my daughter #endometriosis #endo #chronicpain #advocacy	Endoemmm @endoemmm	1.4K	—	87
17	Newborns, Rare Diseases and Family Strength - Real Parenting Stories	Absolute Documentaries @absolutedocumentaries	753	Reino Unido	86
6	HAE advocate Ben shares what it’s like living with a rare disease.	Bionews @bionews_rare	581	Estados Unidos	87
5	Behind the Scenes Fighting for Rare Disease	Jeffrey Randall Allen @legacy831official	530	—	87
13	Employment and Education living with a rare disease	Bionews @bionews_rare	380	Estados Unidos	86
11	Kelly shares how important it is to raise awareness for rare diseases!	Bionews @bionews_rare	379	Estados Unidos	86
20	ERN ReCONNET video to launch the RARE DISEASES AWARENESS MONTH 2024!	ERN ReCONNET @ernreconnet	360	—	85
15	Countdown to Rare Disease Day 2026!	National Organization for Rare Disorders (NORD) @raredisorders	277	Estados Unidos	86
2	Cheryl is the mother of a daughter living with a rare disease and a member of NORD.	Bionews @bionews_rare	173	Estados Unidos	87
19	Stay Covered: Open Enrollment Essentials for Rare Disease Families	National Organization for Rare Disorders (NORD) @raredisorders	152	Estados Unidos	85
14	Curious about how other people impacted by rare diseases deal with relationships, work, school...	Bionews @bionews_rare	149	Estados Unidos	86
16	Learn How to Support Our Rare Disease Citizen Petition to the FDA	National Organization for Rare Disorders (NORD) @raredisorders	76	Estados Unidos	86
10	Mental health living with a rare disease.	Bionews @bionews_rare	56	Estados Unidos	86
4	Mobilize for Newborn Screening: Tools for Advocates During Awareness Month	National Organization for Rare Disorders (NORD) @raredisorders	44	Estados Unidos	87
8	Join the Movement: Raising Awareness for Rare Diseases	Avera Health @averahealth	27	—	87
18	How to Volunteer to Spread Rare Disease Awareness with NORD	National Organization for Rare Disorders (NORD) @raredisorders	23	Estados Unidos	86
7	128. Navigating the Impossible: Real Talk on Rare Diseases with Nikki McIntosh	Burnt Pancakes @burnt.pancakes	15	—	87
3	Rare Diseases: A Global Priority for Equity - Advocate Testimonials	Rare Diseases International @rarediseasesinternational3378	6	—	87
1	Adaptive Sports and Recreation for Rare and Chronic Conditions with Abbey Hauser	Our Odyssey @ourodyssey123	0	Estados Unidos	88
12	Rare Disease Day & !Overjoyed Launch Celebration!	Our Odyssey @ourodyssey123	0	Estados Unidos	86