Similares a Cheryl is the mother of a daughter living with a rare disease and a member of NORD.

20 vecinos (text_768) · 173 views · Bionews · Estados Unidos


★	Cheryl is the mother of a daughter living with a rare disease and a member of NORD.	Bionews @bionews_rare	173	Estados Unidos
19	A nomadic mother's crisis: sick baby, home care and many children	Nomadic Banoo @nomadicbanoo	—	Reino Unido	85
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20	Lisa's story \| Huntington's Disease Association AGM 2025	Huntington's Disease Association @huntingtonsdiseaseassociation	459	Reino Unido	85
13	Employment and Education living with a rare disease	Bionews @bionews_rare	380	Estados Unidos	86
14	We’re highlighting the reality of navigating mental health while living with a rare disease	Bionews @bionews_rare	165	Estados Unidos	86
8	Stay Covered: Open Enrollment Essentials for Rare Disease Families	National Organization for Rare Disorders (NORD) @raredisorders	152	Estados Unidos	86
2	Curious about how other people impacted by rare diseases deal with relationships, work, school...	Bionews @bionews_rare	149	Estados Unidos	87
3	When caregiving was most demanding, self-care often took a backseat—but now...	Bionews @bionews_rare	124	Estados Unidos	87
17	Angela \| Charcot-Marie-Tooth disease #disabilityisnotinability #rarediseases #raredisease	Same but Different @samebutdifferentcic	111	Reino Unido	85
9	Sometimes the person caring for you understands more than you realize.	Bionews @bionews_rare	100	Estados Unidos	86
10	Mental health living with a rare disease.	Bionews @bionews_rare	56	Estados Unidos	86
16	Raising awareness on rare disease day	KOIN 6 @koinlocal6	55	Estados Unidos	85
4	Mobilize for Newborn Screening: Tools for Advocates During Awareness Month	National Organization for Rare Disorders (NORD) @raredisorders	44	Estados Unidos	87
11	Disability Pride Month Spotlight: Emmelina’s Life with Ehlers-Danlos Syndrome (EDS)	National Organization for Rare Disorders (NORD) @raredisorders	35	Estados Unidos	86
15	Join the Movement: Raising Awareness for Rare Diseases	Avera Health @averahealth	27	—	86
7	Rare Faces of Medicaid: Teresa	National Organization for Rare Disorders (NORD) @raredisorders	26	Estados Unidos	86
6	128. Navigating the Impossible: Real Talk on Rare Diseases with Nikki McIntosh	Burnt Pancakes @burnt.pancakes	15	—	86
12	Fair For Rare: Karen has a son living with Gaucher Disease	Rare Voices Australia @rarevoicesaustralia2025	6	Australia	86
5	Fair For Rare: Karen shares her story	Rare Voices Australia @rarevoicesaustralia2025	1	Australia	86