| ★ | Curious about how other people impacted by rare diseases deal with relationships, work, school... | | 149 | Estados Unidos | |
| 18 | Rare Disease Day 2026 Official Video | Rare Disease Day @rarediseaseday | 6.0K | — | 87 |
| 5 | How do you explain your condition? | | 1.6K | Estados Unidos | 89 |
| 3 | 💙 We are getting closer to Rare Disease Day on February 28. | | 1.5K | Estados Unidos | 89 |
| 4 | Living with a rare disease can deeply impact your mental health. | | 1.3K | Estados Unidos | 89 |
| 15 | HAE advocate Ben shares what it’s like living with a rare disease. | | 581 | Estados Unidos | 87 |
| 1 | Employment and Education living with a rare disease | | 380 | Estados Unidos | 90 |
| 17 | Countdown to Rare Disease Day 2026! | National Organization for Rare Disorders (NORD) @raredisorders | 277 | Estados Unidos | 87 |
| 19 | Cheryl is the mother of a daughter living with a rare disease and a member of NORD. | | 173 | Estados Unidos | 87 |
| 10 | We’re highlighting the reality of navigating mental health while living with a rare disease | | 165 | Estados Unidos | 88 |
| 6 | Sometimes the person caring for you understands more than you realize. | | 100 | Estados Unidos | 89 |
| 11 | Heather Novak shares how living with hypoparathyroidism has reshaped her relationships. | | 91 | Estados Unidos | 88 |
| 2 | Mental health living with a rare disease. | | 56 | Estados Unidos | 90 |
| 7 | World Mental Health Day | Huntington's disease | Huntington's Disease Association @huntingtonsdiseaseassociation | 39 | Reino Unido | 88 |
| 14 | Dr. Vellathottam on AI Clinical Intelligence to assist physicians with Rare Disease patient care | Khure Health @khurehealth4579 | 37 | Canadá | 87 |
| 9 | Join the Movement: Raising Awareness for Rare Diseases | | 27 | — | 88 |
| 12 | Raising awareness for rare disorder | FOX Carolina News @foxcarolinanewstv | 24 | Estados Unidos | 88 |
| 16 | Do Others In MD Support Groups Understand My Struggles? | Muscular Dystrophy Support Network @musculardystrophynetwork | 4 | Estados Unidos | 87 |
| 8 | 🌟 Navigating Neurodiversity in Relationships & Dating! 💖✨ | The Roxi Foundation @theroxifoundation | 1 | Reino Unido | 88 |
| 20 | Fair For Rare: Gidon's explains why people with rare disease need your help | Rare Voices Australia @rarevoicesaustralia2025 | 1 | Australia | 87 |
| 13 | Rare Disease Day & !Overjoyed Launch Celebration! | Our Odyssey @ourodyssey123 | 0 | Estados Unidos | 87 |