Similares a Disability Pride Month Spotlight: Emmelina’s Life with Ehlers-Danlos Syndrome (EDS)

20 vecinos (text_768) · 35 views · National Organization for Rare Disorders (NORD) · Estados Unidos


★	Disability Pride Month Spotlight: Emmelina’s Life with Ehlers-Danlos Syndrome (EDS)	National Organization for Rare Disorders (NORD) @raredisorders	35	Estados Unidos
11	Get rid of your hypermobility pain! #hypermobility #ehlersdanlossyndrome	Whealth @whealth_	10.7K	Estados Unidos	86
14	Living with Daily Pain: hEDS	Rolling Forward with Zack Sikora @wheelz3.14	10.0K	Estados Unidos	86
5	Life with hypermobility (hEDS) #hypermobility	Whealth @whealth_	9.7K	Estados Unidos	87
7	Hypermobility, MCAS, and IBS with Dr. Zach Spiritos #ibs	Whealth @whealth_	3.2K	Estados Unidos	87
16	Exploring the Connection: Autism & Synesthesia #NeurodivergentLife #ADHD #AutismAwareness	The Aspie World @theaspieworld	1.4K	Reino Unido	86
13	Unlocking the Connection: Autism and Synesthesia Explored #Neurodiversity #AutismAwareness	The Aspie World @theaspieworld	825	Reino Unido	86
18	A FOCUS ON DISABILITY PROGRESSION ACROSS THE MS SPECTRUM	The MS Views and News Learning Channel @msviewsandnews	701	Estados Unidos	86
19	Cheryl is the mother of a daughter living with a rare disease and a member of NORD.	Bionews @bionews_rare	173	Estados Unidos	86
9	We’re highlighting the reality of navigating mental health while living with a rare disease	Bionews @bionews_rare	165	Estados Unidos	86
3	Disability Pride Month & Self-Care: Ashley’s Journey with Hermansky-Pudlak Syndrome (HPS)	National Organization for Rare Disorders (NORD) @raredisorders	160	Estados Unidos	88
2	Everything you always wanted to know about Ehlers-Danlos Syndromes (EDS) – Part two	ERN ReCONNET @ernreconnet	151	—	88
1	More Than a Diagnosis: Celebrating Disability Pride Month #DisabilitiesAwareness	National Organization for Rare Disorders (NORD) @raredisorders	135	Estados Unidos	90
20	“Why Do Some People Only See My Disability?”	ThisAbility @thisability8806	54	Reino Unido	86
10	Disability Pride month with Sandra	VistAbility @vistability	40	—	86
4	Living with Ehlers-Danlos Syndrome	Rolling Forward with Zack Sikora @wheelz3.14	26	Estados Unidos	88
6	Disability Pride month @ CAP-Concord	VistAbility @vistability	22	—	87
12	128. Navigating the Impossible: Real Talk on Rare Diseases with Nikki McIntosh	Burnt Pancakes @burnt.pancakes	15	—	86
17	Do Others In MD Support Groups Understand My Struggles?	Muscular Dystrophy Support Network @musculardystrophynetwork	4	Estados Unidos	86
15	How Can Disability Advocates Prevent Burnout In Grassroots Efforts? - Disability Parenting Network	Disability Parenting Network @disabilityparentingnetwork	3	Estados Unidos	86
8	Adaptive Sports and Recreation for Rare and Chronic Conditions with Abbey Hauser	Our Odyssey @ourodyssey123	0	Estados Unidos	86