| ★ | Hemophila advocate Tracye Hamler shares self care advice with a rare disease. | | 916 | Estados Unidos | |
| 10 | "🌟 Fighting Illness Together: A Beautiful Tale of Iranian Nomadic Family Support 💪" | | — | Reino Unido | 85 |
| 11 | I FAINTED🩸Then went thrifting to cheer myself up… #bloodwork #thriftfinds #thriftwithme | | 43.1K | Estados Unidos | 85 |
| 17 | Her Two Children Celebrated Saving Her Life.. 🥹❤️🩹 | FindPotential @findpotential | 13.5K | Reino Unido | 85 |
| 16 | How do you explain your condition? | | 1.6K | Estados Unidos | 85 |
| 5 | My SMA is complex and requires complex care. | | 1.2K | Estados Unidos | 86 |
| 14 | Managing Severe External Bleeding | Life Saving First Aid @lifesavingfirstaid | 959 | Australia | 85 |
| 3 | HAE advocate Ben shares what it’s like living with a rare disease. | | 581 | Estados Unidos | 87 |
| 15 | Life of a Rare Disease Advocate - NORD ft. Swifties | National Organization for Rare Disorders (NORD) @raredisorders | 562 | Estados Unidos | 85 |
| 2 | Kelly shares how important it is to raise awareness for rare diseases! | | 379 | Estados Unidos | 87 |
| 7 | Disability Pride Month & Self-Care: Ashley’s Journey with Hermansky-Pudlak Syndrome (HPS) | National Organization for Rare Disorders (NORD) @raredisorders | 160 | Estados Unidos | 86 |
| 4 | Curious about how other people impacted by rare diseases deal with relationships, work, school... | | 149 | Estados Unidos | 87 |
| 18 | Heather Novak shares how living with hypoparathyroidism has reshaped her relationships. | | 91 | Estados Unidos | 85 |
| 1 | Hemophilia advocate Tracye Hamler shares with us lessons a rare disease can teach you. | | 84 | Estados Unidos | 95 |
| 8 | Mental health living with a rare disease. | | 56 | Estados Unidos | 86 |
| 13 | Advocacy Promo 2025 | Hemophilia Federation of America @hemophiliafederationofamerica | 52 | Estados Unidos | 85 |
| 20 | Keeping yourself in mind: Results of mental wellbeing therapy for people affected by Huntington's | Huntington's Disease Association @huntingtonsdiseaseassociation | 36 | Reino Unido | 85 |
| 6 | Bonnie | Haemophilia A Severe #disabilityisnotinability #rarediseases #disabiltyawareness | Same but Different @samebutdifferentcic | 22 | Reino Unido | 86 |
| 9 | Episode 8: Teens Share Advice on Staying Mentally & Physically Fit | NYC Hemophilia Chapter @nychemophiliachapter2174 | 17 | Estados Unidos | 86 |
| 12 | Chair Yoga with Tina Cumiskey | NYC Hemophilia Chapter @nychemophiliachapter2174 | 9 | Estados Unidos | 85 |
| 19 | Chair Yoga with Tina Cumiskey | NYC Hemophilia Chapter @nychemophiliachapter2174 | 7 | Estados Unidos | 85 |