| ★ | Investment & Support | Rare Diseases International @rarediseasesinternational3378 | 10 | — | |
| 20 | A conversation about Europe’s competitiveness and health security with Steffen Saltofte, Zentiva | | 6.1K | Bélgica | 83 |
| 7 | EU Announces €15 Million Ebola Aid for DR Congo and Uganda | European Commission @europeancommission | 3.6K | Bélgica | 84 |
| 10 | 🔴 RDD webinar: how to raise awareness among healthcare providers? | Rare Disease Day @rarediseaseday | 638 | — | 83 |
| 1 | ERN ReCONNET video to launch the RARE DISEASES AWARENESS MONTH 2024! | | 360 | — | 86 |
| 4 | Countdown to Rare Disease Day 2026! | National Organization for Rare Disorders (NORD) @raredisorders | 277 | Estados Unidos | 84 |
| 18 | Understanding the FDA's Plausible Mechanism Framework | National Organization for Rare Disorders (NORD) @raredisorders | 276 | Estados Unidos | 83 |
| 6 | Partage et valorisation des données dans les maladies rares : défis et perspectives européennes | AP-HP, Assistance Publique - Hôpitaux de Paris @aphphopitauxdeparis | 165 | Francia | 84 |
| 15 | Stay Covered: Open Enrollment Essentials for Rare Disease Families | National Organization for Rare Disorders (NORD) @raredisorders | 152 | Estados Unidos | 83 |
| 3 | "It's Rare for Me" Art Exhibit at the European Parliament | | 110 | Bélgica | 85 |
| 8 | Learn How to Support Our Rare Disease Citizen Petition to the FDA | National Organization for Rare Disorders (NORD) @raredisorders | 76 | Estados Unidos | 84 |
| 16 | Panel Discussion on the Value of Networked Care Globally | Rare Diseases International @rarediseasesinternational3378 | 60 | — | 83 |
| 11 | Voices of PLWRD and PLWUD from around the world in support of the #Resolution4Rare | Rare Diseases International @rarediseasesinternational3378 | 49 | — | 83 |
| 17 | Supporting vulnerable groups during, and in the emergence from, the pandemic | Books Beyond Words @booksbeyondwords | 12 | — | 83 |
| 14 | 3 SUPPORTING RARE DISEASES AS A GLOBAL PRIORITY FOR EQUITY | Rare Diseases International @rarediseasesinternational3378 | 10 | — | 83 |
| 2 | Supporting Multi-Disciplinary Care 2 | Rare Diseases International @rarediseasesinternational3378 | 7 | — | 85 |
| 5 | #COVID - EU support COVAX facility for access to an affordable vaccine for all | EU Reporter - Featured @eureporterfeatured | 3 | — | 84 |
| 9 | Fair For Rare: Call for a National Rare Disease Framework | Rare Voices Australia @rarevoicesaustralia2025 | 1 | Australia | 83 |
| 12 | #EuropeanSemester - Dombrovskis makes the case for investment as the EU emerges from the pandemic | EU Reporter - Featured @eureporterfeatured | 0 | — | 83 |
| 13 | #EuropeanSemester - Gentiloni says the message is ‘crystal clear’ investment will be needed | EU Reporter - Featured @eureporterfeatured | 0 | — | 83 |
| 19 | Fair For Rare: Supporting the rare disease community | Rare Voices Australia @rarevoicesaustralia2025 | 0 | Australia | 83 |