| ★ | Shona | Niemann-Pick disease Type C (NPC) #disabilityisnotinability #rarediseases | Same but Different @samebutdifferentcic | 46 | Reino Unido | |
| 15 | Help 4-Year-Old Alina Fight Niemann-Pick Disease Type C | Pain Care Trust @paincare_trust | 663 | India | 85 |
| 1 | Kelsie | Niemann-Pick Disease Type C (NPC) #disabilityisnotinability #rarediseases | Same but Different @samebutdifferentcic | 494 | Reino Unido | 98 |
| 5 | Tayen | Hypohidrotic Ectodermal Dysplasia #disabilityisnotinability #disabiltyawareness | Same but Different @samebutdifferentcic | 484 | Reino Unido | 87 |
| 19 | Florence | Mosaic Trisomy 8 (T8M) #disabilityisnotinability #rarediseases #disabiltyawareness | Same but Different @samebutdifferentcic | 457 | Reino Unido | 84 |
| 17 | Choosing the Right Genetic Testing for Marfan, LDS, VEDS, Stickler, and Related Conditions | The Marfan Foundation @themarfanfoundation | 412 | Estados Unidos | 84 |
| 16 | Avi | Fibrodysplasia Ossificans Progressiva (FOP) #disabilityisnotinability #rarediseases | Same but Different @samebutdifferentcic | 410 | Reino Unido | 85 |
| 20 | Employment and Education living with a rare disease | | 380 | Estados Unidos | 84 |
| 6 | Abigail | SAPHO Syndrome #disabilityisnotinability #rarediseases #raredisease #disabiltyawareness | Same but Different @samebutdifferentcic | 300 | Reino Unido | 87 |
| 7 | Hannah | Ectodermal Dysplasia #disabilityisnotinability #rarediseases #disabiltyawareness | Same but Different @samebutdifferentcic | 262 | Reino Unido | 87 |
| 2 | Caroline | Behçet’s Disease #disabilityisnotinability #rarediseases #disabiltyawareness | Same but Different @samebutdifferentcic | 114 | Reino Unido | 88 |
| 3 | Angela | Charcot-Marie-Tooth disease #disabilityisnotinability #rarediseases #raredisease | Same but Different @samebutdifferentcic | 111 | Reino Unido | 87 |
| 4 | Michelle | Behçet’s Disease #disabilityisnotinability #rarediseases #disabiltyawareness | Same but Different @samebutdifferentcic | 95 | Reino Unido | 87 |
| 8 | Rhys | Superficial Siderosis #disabilityisnotinability #rarediseases | Same but Different @samebutdifferentcic | 46 | Reino Unido | 86 |
| 13 | Christina | Paraganglioma #disabilityisnotinability #rarediseases #disabiltyawareness | Same but Different @samebutdifferentcic | 38 | Reino Unido | 85 |
| 12 | Michelle | Myasthenia Gravis #disabilityisnotinability #rarediseases #disabiltyawareness | Same but Different @samebutdifferentcic | 27 | Reino Unido | 85 |
| 18 | Raising awareness for rare disorder | FOX Carolina News @foxcarolinanewstv | 24 | Estados Unidos | 84 |
| 9 | Bonnie | Haemophilia A Severe #disabilityisnotinability #rarediseases #disabiltyawareness | Same but Different @samebutdifferentcic | 22 | Reino Unido | 85 |
| 14 | Days of Rare Gallery #disabilityisnotinability #rarediseases #disabilty #raredisease | Same but Different @samebutdifferentcic | 8 | Reino Unido | 85 |
| 10 | Understanding and raising awareness on rare diseases. | | 4 | Sudáfrica | 85 |
| 11 | Raising awareness about rare disease | | 0 | Estados Unidos | 85 |