Similares a Kelsie | Niemann-Pick Disease Type C (NPC) #disabilityisnotinability #rarediseases

20 vecinos (text_768) · 494 views · Same but Different · Reino Unido


★	Kelsie \| Niemann-Pick Disease Type C (NPC) #disabilityisnotinability #rarediseases	Same but Different @samebutdifferentcic	494	Reino Unido
10	Help 4-Year-Old Alina Fight Niemann-Pick Disease Type C	Pain Care Trust @paincare_trust	663	India	85
6	Tayen \| Hypohidrotic Ectodermal Dysplasia #disabilityisnotinability #disabiltyawareness	Same but Different @samebutdifferentcic	484	Reino Unido	86
19	Choosing the Right Genetic Testing for Marfan, LDS, VEDS, Stickler, and Related Conditions	The Marfan Foundation @themarfanfoundation	412	Estados Unidos	83
16	Avi \| Fibrodysplasia Ossificans Progressiva (FOP) #disabilityisnotinability #rarediseases	Same but Different @samebutdifferentcic	410	Reino Unido	84
17	Kelly shares how important it is to raise awareness for rare diseases!	Bionews @bionews_rare	379	Estados Unidos	84
5	Abigail \| SAPHO Syndrome #disabilityisnotinability #rarediseases #raredisease #disabiltyawareness	Same but Different @samebutdifferentcic	300	Reino Unido	87
7	Hannah \| Ectodermal Dysplasia #disabilityisnotinability #rarediseases #disabiltyawareness	Same but Different @samebutdifferentcic	262	Reino Unido	86
20	Disability Pride Month & Self-Care: Ashley’s Journey with Hermansky-Pudlak Syndrome (HPS)	National Organization for Rare Disorders (NORD) @raredisorders	160	Estados Unidos	83
2	Caroline \| Behçet’s Disease #disabilityisnotinability #rarediseases #disabiltyawareness	Same but Different @samebutdifferentcic	114	Reino Unido	88
3	Angela \| Charcot-Marie-Tooth disease #disabilityisnotinability #rarediseases #raredisease	Same but Different @samebutdifferentcic	111	Reino Unido	87
4	Michelle \| Behçet’s Disease #disabilityisnotinability #rarediseases #disabiltyawareness	Same but Different @samebutdifferentcic	95	Reino Unido	87
1	Shona \| Niemann-Pick disease Type C (NPC) #disabilityisnotinability #rarediseases	Same but Different @samebutdifferentcic	46	Reino Unido	98
9	Rhys \| Superficial Siderosis #disabilityisnotinability #rarediseases	Same but Different @samebutdifferentcic	46	Reino Unido	86
11	Christina \| Paraganglioma #disabilityisnotinability #rarediseases #disabiltyawareness	Same but Different @samebutdifferentcic	38	Reino Unido	85
14	Michelle \| Myasthenia Gravis #disabilityisnotinability #rarediseases #disabiltyawareness	Same but Different @samebutdifferentcic	27	Reino Unido	85
18	Raising awareness for rare disorder	FOX Carolina News @foxcarolinanewstv	24	Estados Unidos	84
8	Bonnie \| Haemophilia A Severe #disabilityisnotinability #rarediseases #disabiltyawareness	Same but Different @samebutdifferentcic	22	Reino Unido	86
15	Days of Rare Gallery #disabilityisnotinability #rarediseases #disabilty #raredisease	Same but Different @samebutdifferentcic	8	Reino Unido	84
12	Understanding and raising awareness on rare diseases.	Salaamedia @salaamedia	4	Sudáfrica	85
13	Raising awareness about rare disease	KSHB 41 @kshb41	0	Estados Unidos	85