| ★ |  Understanding Your Loeys-Dietz Subtype & Why It Matters with Gretchen MacCarrick & Julie Richer | The Marfan Foundation @themarfanfoundation | 192 | Estados Unidos | |
| 15 |  Variants of Uncertain Significance: What a VUS Result Means for You and Your Family | The Marfan Foundation @themarfanfoundation | 641 | Estados Unidos | 83 |
| 3 |  People's Perspectives: Living with Loeys-Dietz (Presented by the LDSF Canada and the LDSF US) | The Marfan Foundation @themarfanfoundation | 522 | Estados Unidos | 87 |
| 1 |  Understanding the Updated LDS Primer for Diagnosis and Management | The Marfan Foundation @themarfanfoundation | 480 | Estados Unidos | 91 |
| 5 |  Choosing the Right Genetic Testing for Marfan, LDS, VEDS, Stickler, and Related Conditions | The Marfan Foundation @themarfanfoundation | 412 | Estados Unidos | 85 |
| 13 |  Beyond the Aorta: Understanding Your Vascular System with James Black, MD | The Marfan Foundation @themarfanfoundation | 347 | Estados Unidos | 83 |
| 4 |  Bone Health in Marfan and Loeys-Dietz syndromes with Dr. Alison Boyce | The Marfan Foundation @themarfanfoundation | 335 | Estados Unidos | 87 |
| 12 |  What Every Parent (and Non-Parent) Should Know About Learning Disabilities | Child Mind Institute @childmindinstitute | 320 | Estados Unidos | 83 |
| 2 |  Know. Connect. Thrive. The Podcast - Episode 4, Part 1: Ways to Use the Updated Loeys-Dietz Primer | The Marfan Foundation @themarfanfoundation | 215 | Estados Unidos | 89 |
| 6 |  Insights from the LDS Natural History Study at NIH: Audiology and Otology | The Marfan Foundation @themarfanfoundation | 198 | Estados Unidos | 85 |
| 17 |  Stay Covered: Open Enrollment Essentials for Rare Disease Families | National Organization for Rare Disorders (NORD) @raredisorders | 152 | Estados Unidos | 83 |
| 16 |  Curious about how other people impacted by rare diseases deal with relationships, work, school... | | 149 | Estados Unidos | 83 |
| 10 |  What Should I Ask About My Pathology Final Diagnosis? | Family Cancer Solutions @familycancersolutions | 110 | Estados Unidos | 83 |
| 7 |  Rooted & Resilient: Mindfulness Tools for LDS Advocates | The Marfan Foundation @themarfanfoundation | 86 | Estados Unidos | 84 |
| 20 |  From Patient to Powerful: Finding Your Voice Through Thyroid Eye Disease | Prevent Blindness Texas @preventblindnesstexas | 28 | — | 83 |
| 18 |  What Should You Disclose About Your MD To Others? | Muscular Dystrophy Support Network @musculardystrophynetwork | 15 | Estados Unidos | 83 |
| 9 |  What Is The Best Way To Share An MD Diagnosis? | Muscular Dystrophy Support Network @musculardystrophynetwork | 12 | Estados Unidos | 84 |
| 19 |  Why Patient-Reported Outcomes Matter in #FSGS | | 8 | Estados Unidos | 83 |
| 11 |  Decoding ADHD Understanding Its Subtypes | Cognitive Development Learning Centre @cognitivedevelopment17 | 4 | Singapur | 83 |
| 14 |  How To Get Caregiving Support From Family Members? | Muscular Dystrophy Support Network @musculardystrophynetwork | 1 | Estados Unidos | 83 |
| 8 |  Genetic Diseases: The Truth About How They Are Passed On | Blue Current @bluecurrent7 | 0 | India | 84 |